Cure2Children: what is it about?
Cure2Children (C2C) is a non-profit organization providing free support to health professionals, families, volunteers and institutions in developing countries caring for children with leukemia, cancer and other severe diseases in compliance with shared principles and vision. The services offered will be pertinent to local realities and social values. The end is to contribute to the development of worldwide evidence-based diagnostic and management standards that may improve the cure of all children with cancer.
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Meeting with families in Pakistan
After almost two years of preparation we can finally offer a cure to the children of our first families. The first drug we need, thiotepa, should be approved in a couple of days. This is very good news.
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Project Pakistan: visit to Badin
Badin is a semi-rural city of approximately 150,000 inhabitants, 200 km from Karachi. We visit the Thalassemia Care Centre of Badin, discuss our project with Dr. Haroon Manon, the centre coordinator. We meet almost twenty families and I am very impressed how well this children are cared for.
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The last days in Pakistan
July 9, 2008. To get from Islamabad to Lahore I booked a taxi, it’s quicker and less expensive. I am curious to make this trip and enjoy some site-seeing, a little less than 400 km of well-kept comfortable highway.
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Project Pakistan: the National Institute of Child Health
The Children’s Hospital is a large clinical facility with more than 400 beds with all major paediatric medical and surgical subspecialties. The oncology service is very active with 350 new cases a year, mostly leukaemias (50%), but also lymphomas, wilms tumors, retinoblastomas, neuroblastomas, germ cell tumors, bone tumors and soft-tissue sarcomas.
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Visit to the Pakistan Institute of Medical Sciences
It’s the second time I am at the Pakistan Institute of Medical Sciences (PIMS), the largest governmental academic hospitals in Islamabad and one of the main medical institutions of the country. In February 2007 I visited the Thalassaemia and Heamophilia Centre and met Dr. Tahira Zafar, its Director. I was very impressed by her work and invited her to the workshop we organized in Siena last March.
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Transplant network in Pakistan
Thalassemia major is the most common life-threatening genetic disease. Even though long-term supportive care with regular red cell transfusion and intensive chelation therapy may prolong life-expectancy to the fourth decade of life, bone marrow transplantation remains the only curative option.
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CDATA project
Clinical setting is a peculiar and complex environment. Traditional approach is based on a relational database model and it becomes soon a maintenance nightmare when data forms change fortnightly. Cdata tries to address these issues and aims to be a simple and flexible tool to build a clinical content repository and a web collaborative workspace.
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